For more information, please visit my Facebook page at: www.facebook.com/emilysstomach.
The Facebook event can be found here: https://www.facebook.com/events/506385573219017/
I would like to make a safe space where people can share their tubie stories and pictures.
If you would like to give me permission to share your story and/or pictures, please let me know by posting I have permission on the event wall on Facebook, or by emailing them to me at: email@example.com.
Any person information you give me outside of feeding tubes, TPN, or weight will NOT be shared with anyone. That is between us. I’m only interested in sharing your pictures and stories, and like I said above, I will not do that without your permission in an email.
If you want to make a video for Feeding Tube Awareness Week, that would be amazing, too! By emailing me your story and/or video, you could help people on the fence about getting a feeding tube, or just help someone who has never met anyone with GP or a feeding tube understand it more.
I have worked with the group, striding sisters (https://www.facebook.com/groups/9547716075/.) yearly, for many years, to make Feeding Tube Awareness Week special, but also to bring awareness to it. I'm writing a Blog article about feeding tubes and I hope to have it out the same time as Feeding Tube Awareness Week.
I also have a form link on the event page that would be really helpful if you filled out. I'm using the answers for my blog article but not sharing anyone's personal information. Only have three tTPN responses and maybe 16 others that filled out the feeding tube portion of the survey. Thank you in advance and I hope this will be a very successful week to bring awareness to GP and what it does to our bodies. Thank you SO much in advance!